The Patchwork Quilt by Valerie Douglas

A doctor once told me that I had a portfolio career.  As my working life as a nurse in the NHS draws to a close it seems to me more like a patchwork quilt, assembled from many knitted squares.  Beginning in a psychiatric rehabilitation ward, I moved to acute admission in the old Crichton.  I dipped in and out of that ward undertaking secondments: to the Clinical Research Department, a Lecturer/Practitioner role, Care of the Elderly, Patient Safety and Improvement.  Then full circle, I moved back to rehabilitation nursing, this time interwoven with forensic threads.  Knit one, purl one.

Recently I’ve been on a partnership working secondment, with seats on the IJB and the RCN Board.  I have needed to insert some elasticated fabric into my knitting, as this has stretched me in directions unlike anything experienced before.  

With retirement imminent it is inevitable that I reflect on the whole quilt, the completed work, and remember the dropped stitches, the unravelling I’ve seen, the piecing together, the mending.  Some squares have faded with time but others remain vivid.

elegant ba blanket knitting patterns squares instant download pdf Patchwork Quilt Knitting Pattern

The Quiet Man.  This inpatient was polite, smart, of late middle age.  He wore his depression like a waistcoat watch, well-hidden in a little pocket.  You could just catch a glint of it if you really looked.  One Friday he went home for the day.  This wasn’t unusual.  He would typically return before 9 pm.  When he didn’t appear, staff phoned him.  No answer.  They phoned his family.  No, he didn’t have plans to come home that day, he had informed them explicitly.  Alarm bells rang and rightly so.  He never returned.  He had chosen a way out of his deep, silent despair.  Our thoughts of course went out to his lovely family for their loss.  But today my thoughts are also for us, the staff who nursed him, the doctors who treated him, the domestics who cleaned his room, the ladies at medical records who received those final ward documents.  I wonder if they still mourn him like I do over twenty years later.

Miss M.  Mute, traumatised, psychotic, she hardly ate or slept.  I was on a spell of night duty and would sit by her bed, talking to her, after giving her medicine.  She would listen intently, not responding.  ‘Looks perplexed’ were the words used most often to describe her in nursing notes.  After about a week she was out of bed when I arrived for night shift.  She glided around the ward, keeping close to the walls, vigilant.  One evening I took chocolate éclair sweets in.  I gave three to the nurse and three to the nursing assistant, saying to Miss M as she passed, ‘I’m leaving these three sweets on the table for you.’  She neither slowed nor acknowledged me.  A short while later the nursing assistant bounded into the office, ‘She’s taken those sweets.’  In mental health nursing it is often not diagnostic tests that expose signs of improvement, but observation and engagement.  Nurses can usually pinpoint turning points – medication has started to work, trust has been gained – and I have never forgotten the night of the sweets.  Each Christmas I’m reminded of Miss M when I hang the tinsel angel she made for me before her discharge.

Nursing has presented me with many patterns to follow, using different weights and colours of wool, some challenging designs.  Although all secondments have been worthwhile, I’ve always chosen to return to hands on nursing, the role I rate the highest, the role I value, the one I will miss the most.  Knit one, purl one.

 Val Douglas RMN, DipN, BSc (Hons), MSc Research (nursing)

Life changing events by Christiane Shrimpton

For those of us who have been working in healthcare for some time it can be difficult to remain aware of the patient perspective. For many patients what is part of everyday work for us is a significant change in their life. While I would not quite advocate the notion of medical students being forced to experience what life as a patient is like, this article really resonated with me. There still is a significant power difference between doctors and patients, something that Realistic Medicine is planning to reduce by promoting a shared decision making approach. And injuries or illnesses can lead to the traumatic disruption described, to the sudden loss of something you have taken for granted. A situation I am only too aware of at the moment.

I suddenly and rather unexpectedly found myself on the receiving end of healthcare following a cycling accident while on holiday in France. I seriously injured my arm and was stuck on the road until the ambulance arrived 30 minutes later. After several phone calls from the ambulance crew I was on a 60 minute journey to the nearest hospital with X-ray facilities. And unlike in the UK I was unable to get any pain killers until I got there as the ambulance did not have any paramedic. It rather brought it home how vulnerable you feel when you are in pain and don’t understand what people are trying to tell you – a situation our patients often find themselves in. While we don’t speak French it is very easy to use medical language because that is what we do with each other all the time. Are we always making sure patients understand? And how often do we really try to understand their perspectives and priorities, find out what the impact on them is? 

My experience of the doctors, nurses and other staff I have interacted with has mostly been good. They had sympathy for the loss I am so strongly experiencing and I have received a lot of excellent care and kindness. I have really appreciated what the NHS offers us here in the UK. And that has included the local hospital, my GP and the tertiary referral centre. Communication between all three has been good and the treatment I have and still do receive has made me feel very well cared for. There have also been aspects I have been less happy with. Overhearing that “bed 10” needed medication felt very impersonal and reminded me of Kate Granger’s # hello my name is campaign for more compassionate care. And there have been occasions when the information I was given by different members of the team seemed to be contradictory. That leads to an element of confusion and uncertainty.

All this has also led me to reflect on my role as an ophthalmologist. Have I been as understanding as I could have been when I had to tell people they will not get their sight back, they have to stop driving? I have always tried to understand the impact on them but I am not sure someone else can ever really understand what it is like. And I know that no matter how hard we try sometimes the message does not come across as we would wish. 

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This was just one of the two very significant changes in my life last year and they could not have been more different. The other one was entirely planned, a career move I had been working towards for a while. After more than 18 years in my previous mainly clinical job as an ophthalmologist I moved to Dumfries to take up the post of Associate Medical Director in the Acute and Diagnostics team. And I could not have been made to feel more welcome. It is fantastic to work with so many people passionate about making a difference to patients. As the news headlines remind us regularly, the NHS is under increasing pressure. So it is really good to see teams come up with innovative ways to overcome challenges. And it is also very important to keep supporting each other in difficult circumstances. Not everyone finds it easy to consider or adjust to different ways of working. I really enjoy getting out and about, meeting patients and staff, listening to their stories and connecting with teams. 

What my experience “on the other side” has also made me very aware of is how easy it is to come across differently to how we intend. And this is much more likely to happen while we feel under pressure ourselves, a common occurrence in the NHS today. We are all aiming to provide the best care we can for our patients. Let us remind ourselves to treat each other with compassion, too, and make the most of working together as multidisciplinary teams. I look forward to joining all the different areas to review our services and consider what improvements we can make. In all of this good communication and an understanding of each other’s perspectives is so important. Change is ever present and in the increasingly fast pace of life and healthcare delivery today all of us need to work closely together to support each other and achieve the best outcomes for our patients.

We will all experience life changing events at times. Some of them will be welcome, exciting and motivating. Others will be difficult and challenge us. Those of us working in healthcare are in the privileged position to be able to make a positive difference to people who are struggling. And we can all look out for each other and help those of us who like me will have to adjust to a different way of life with unexpected restrictions. 

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Christiane Shrimpton is a Consultant Ophthalmologist and Associate Medical Director for the Acute and Diagnostics Directorate at NHS Dumfries and Galloway

Love activity but hate exercise? by Erin Archibald

“Drop down and give me 20”…

What do you think about when you hear exercise and strengthening: sweatiness, gyms, Lycra, pain. As a busy mum to 3 children, exercise is something I don’t have much time to do but am I active? Absolutely!!

erin1I am a specialist Physiotherapist within the reablement service STARS ( short term assessment reablement team)- and my main role is to promote exercise and well being in the community- my target audience- not lycra gym bunnies, but over 65 year olds who normally have a long term condition who are recovering from a spell in hospital, and likely do not own trainers or know what a squat entails.  Who am I to advise to join a swimming group, attend low impact exercise classes or complete a rehab programme when I do not complete myself? Instead I walk to the park, climb up woods, I cycle with my children, I chase after them endlessly… so we need to think different about activity.

The benefits of rehabilitation, recovery and reablement support are well evidenced in Health and Social Care interventions.  The support improves a person’s ability to function independently, encourages exercise choices and to take control of their daily activities.

I work closely with 3rd sector and community teams, to encourage and promote active participation socially- tailoring every service users needs with their capabilities and skill sets and I see the patient as an individual not a condition.

  • what are their hobbies ?
  •  what do they enjoy the most in life?
  •  what is meaningful to them?
  •  what matters to them which they are currently not able to do or accommodate?

erin2We support service users to identify their goals through good conversations. We also support them to develop, retain and regain their skills by understanding what matters to them- this may not often happen initially but over the course of the reablement process from our support workers, we build relationships and find getting to know them and their families/carers imperative for helping them identify their goals.

We look at well being plans which can be something as simple as getting to the shop to purchase a daily paper, getting back to social activities, or being able to transfer into a bed or car again so they can visit someone important to them. We promote the benefits to exercise in line with recent evidence via Scottish government 2017.  Many include:

  • Reducing falls
  • Improving strength and balance-
  • Improve wellbeing
  • Reduce anxiety, improve sleep
  • Social Interactions/ reduces isolation
  • Day to Day activities become easier

As a registered practitioner, we document their wellbeing plans and agree this with the service user, enabling our health care support workers to deliver the daily practice of the chosen activity, whether this is a walk to the shop, a spot of gardening, making soup or practising stairs/ steps. This allows us to see progression and plan goals,

As a physiotherapist, I have blended alongside the occupational therapists in our team in the last five years to learn the importance of occupation (activity) led tasks and changing mindsets to linking social interests to exercise. In the time it takes someone to boil the kettle, they can do basic exercises such as the Balance challenge or super 6 exercise programme.  Reactivating “activity” to improve health and well being, Independence and quality of life is based on continuing research carried out at Newcastle University Institute for ageing with Professor Gore (2017). For example being able to reach your feet to cut your toenails, walk 400 yards or maintain heavy housework. (http://www.knowedlge.scot.nhs.uk/ahpcommunity/lifecurve-survey-2017.aspx)

So, lets get more active and promote activity, lets think differently about exercise , and think about What matters to you for healthy ageing?

Erin Archibald is a Specialist Physiotherapist, STARS- Short term Assessment and Reablement service 28th January 2019.